Sitra has launched a new set of projects to prepare for the establishment of an organization focused on gathering together and coordinating well-being data. The working title of this is “Isaacus – the Digital Health HUB”.
From a single access point, this service organization will provide data that can influence well-being (e.g. patient, demographic and lifestyle data) and open data gathered from various registers and sources. When gathering and processing this data, special attention will be paid to privacy protection, data security and the individual as the key decision-maker on how the data is used and by whom.
As a solution, this has the advantage of using all data in Finland while taking due account of the attendant rights. Citizens will be able to view their own data, as well as using it to maintain their own well-being and access services based on better data than now. Unhindered use of the full range of data generated by society will lead to better care and treatment with more impact, boost the efficiency of service production and research, and help the business sector to grow.
Sitra's projects are aimed at the preparation and launch of the Digital Health HUB. This is a continuation of previous Sitra projects which focused on issues such as management based on social and healthcare data, trials of self-care eHealth services, the development of eServices, knowledge-based well-being as a whole and the use of genome data in healthcare maintenance and illness prevention. The work will be done in extensive collaboration with the public and private sectors and NGOs. The Ministry of Social Affairs and Health, the Ministry of Employment and the Economy, the National Institute for Health and Welfare, the Association of Finnish Local and Regional Authorities, Statistics Finland and CSC are among the organizations involved. The project began in September 2015 and will be completed in autumn 2017.
Read the full story: www.sitra.fi/en/well-being/well-being-data